My name is Patrik Hutzel from intensivecarehotline.com, where we instantly improve the lives for families of critically ill patients in intensive care, so that you can make informed decisions, have peace of mind, control, power and influence, even if you’re not a doctor or a nurse in intensive care.
So today I have an email from Ray who says:
“Hi Patrik,
We recently discovered your videos on YouTube, and we were very impressed by your experience with ICU cases. We are reaching out because we feel lost and overwhelmed and we need guidance about my father’s condition, who’s currently in ICU.
My father is 63 years old, suffered a cardiac arrest while at the gym and while on holidays. The ambulance arrived in approximately eight minutes. He had no measurable heart rate when they came. They performed CPR (cardiopulmonary resuscitation) after which circulation was restored. He was sedated initially, but after sedation was removed, he didn’t wake up. At that time, he still had pupil and pain reflexes. He’s still ventilated with a breathing tube and not waking up.
A CT scan and MRI scan were performed and didn’t show significant brain damage, only a very small, affected area according to the reports. However, on Day 3 – 4 in ICU, he developed sepsis and septic shock, shortly after which he lost his pupil reflex.
A doctor from our hometown actually travelled to his current ICU to support his treatment. He got the ICU team to administer high-dose Vitamin C and B12, while the ICU team provided broad-spectrum antibiotics, and he got more stable. Later, this doctor also recommended additional medications such as methylthioninium chloride, which is also known as Proveblue, and Cerebrolysin to support neurological recovery.
His state was wavy; he was getting better and then worse again. He had a respiratory viral infection. At peak, his CRP was 495 mg/L. After treatment, it dropped to 50 mg/L. Recently he developed a urinary tract infection, and his CRP is currently around 170 mg/L.
He has now been in a natural coma for 43 days. Despite this, he shows responses to us. We visit him every day twice to speak, to play music and voice messages of close loved ones. He reacts to touch, moves his head towards voices, moves his hands and feet, and he can move his tongue. His spontaneous breathing is strong, and the ventilator currently supports only about 30%. This gives us hope.
The ICU team describes him as coma, Glasgow Coma Scale level 4, but they have not been observing his reactions to voice or touch consistently. There have been no follow-up CT or MRI scans since the initial ones. Aside from basic ICU support and the treatments provided by our doctor, there has been limited neurological evaluation.
We are now considering options for repatriation since it’s expensive in the private hospital, and he doesn’t have travel insurance, but we want him to get home to New York. But my father’s business partner is pressuring us to transfer him to another private hospital, but we are concerned about the quality of care in these private hospitals since reviews online are not very good. We don’t want to risk a downgrade in treatment and for this money we can get him home and receive the same, or at least not worse quality of treatment.
We strongly believe he has a chance to wake up, especially since he shows signs of reaction, but we are unsure of the timeline and the best next steps. We would be extremely grateful for your professional advice.
- On his current neurological and overall medical situation.
- Whether transferring him to Istanbul or our home country in New York is safe and advisable.
- What further diagnostic or treatments should be considered at this stage?
- Signs we should look for to assess his progress towards awakening and what are the chances he fully recovers?
- How to ensure the ICU team focuses on neurological rehabilitation, not only basic ICU care?
Thank you very much for your time and expertise. Any guidance you can provide will mean a great deal to our family.
Kind regards,
Ray”
Now look, Ray, this is quite a complex situation with your father, and I can sense the emotional toll this is taking on your family. You’re dealing with a cardiac arrest survivor who’s been in ICU for 43 days, complicated by septic shock, multiple infections, and you’re trying to navigate international healthcare while facing pressure from business partners and financial constraints. Let me break this down for you.
First, let me address the Elephant in the room.
Yes, there’s absolutely hope. And here’s why I’m saying that your father is showing several encouraging signs that the ICU team may not be fully appreciating or documenting.
- He’s reacting to touch and voice.
- He’s moving his head towards voices.
- He has spontaneous hand and foot movements.
- His tongue movement is present.
- His spontaneous breathing efforts are strong at 70% with only 30% ventilator support.
These are not signs of someone with severe anoxic brain injury. The fact the initial CT and MRI showed minimal damage is also significant.
Let’s look at the Glasgow Coma Scale Level 4 Assessment Problem.
It’s a critical issue I see repeatedly in ICU, superficial neurological assessments. When ICU Teams say Glasgow Coma Scale 4 without documenting the responses you are witnessing daily, there’s a disconnect. This is exactly why having access to all medical records is absolutely critical right now. You need to get your hands on all nursing progress notes, daily medical assessments, sedation records, what medications, what doses, when they were stopped all imaging reports, not just summaries, microbiology results, medication charts, fluid balance charts, ventilator settings, pathology, lab results, and the list goes on. You can leave no stone unturned.
Let’s also look at the Sepsis and Infection complications.
Your father’s course has been complicated by early septic shock, Day 3 – 4, respiratory viral infection, current urinary tract infection with CRP (C-reactive Protein) of 170 mg/L. It’s really important, ongoing infections and inflammation can significantly suppress consciousness. A CRP of 170 mg/L means his body is still fighting a significant infection right now. This alone could explain why he’s not waking up fully, even if his brain injury is minimal. The loss of pupil reflexes during septic shock is concerning, but pupils can recover, and the fact that he’s showing other responses suggests that his brain stem function is present.
So, what should you do right now?
- Get a Comprehensive Neurological Assessment.
The ICU team needs to do a repeat MRI with diffusion-weighted imaging. Forty-three days out, you need updated imaging. That’s perfectly reasonable. EEG (electroencephalograph) monitoring to assess brain activity and rule out subclinical seizures, formal neurological consultation with documentation of all responses, assessment of sedation effects even small doses of sedatives can accumulate.
- Address the active infection.
With a CRP of 170 mg/L, your father’s body is in an inflammatory state. This needs aggressive management, appropriate antibiotics based on culture results, source control. Is the urinary catheter the source? Nutritional support to aid recovery.
- Next, the repatriation decision.
Now about getting him back home to New York versus transferring to another private hospital in Turkey, this is a critical decision that needs expert guidance. Here’s what you need to consider for any transfer: his current ventilator settings and oxygen requirements, hemodynamic stability, blood pressure support needed, active infection status, air ambulance medical team capabilities, to mention the most important ones.
- Let’s also look at the financial reality.
You’re right to consider that the cost of continued private hospital care in Turkey could fund repatriation to New York, where you have insurance coverage, you’re familiar with the healthcare system, family can visit more easily, and you can access home care options with Intensive Care at Home.
- Let’s also at the business partner pressure.
Don’t let anyone pressure you into decisions about your father’s care. This is your decision as a family. If the reviews of the proposed private hospitals aren’t good, trust your instincts.
This is where we come in.
Look, Ray, what you need right now is a consulting call with myself or one of my team members. Here’s why? We need to review all medical records, not just summaries, but the actual daily progress notes, imaging, lab work, everything. Fluid balance charts, ventilation charts, neurological assessments, CT scans, MRI scan reports, everything. We can have a consulting call with you and the ICU team to clarify your father’s actual neurological status, what assessments have been done and what’s been missing.
We can question and advocate for the appropriate investigations and treatments. We can assess transfer safety and help coordinate the medical aspects of repatriation, and we’ve got a proven track record of arranging that with other similar situations. And lastly but not least, we can cut through the noise and give you a clear picture of prognosis and realistic timelines. This is exactly the type of situation where families feel lost because they’re getting conflicting information, incomplete assessments and pressure from multiple directions. I also want to answer your specific questions.
What’s his current medical situation like?
Based on what you’ve described, Ray, neurologically more promising than Coma Level 4 suggests, but needs proper assessment with updated imaging and EEG. And maybe what you can also do if they’re not documenting accurately, take some videos of your father responding to you and your family and show it to them. If they don’t want to see it and you see it, take some pictures or videos as evidence.
Next, he’s got an ongoing infection as a major factor suppressing consciousness right now. Respiratory function is encouraging with 70% spontaneous breathing. Timeline, 43 days is prolonged but not beyond the window for recovery, especially with ongoing infections.
Is the transfer safe and advisable?
This requires detailed medical record review, but generally if he’s stable on current vent settings, which 30% support suggests, if infections are being treated, if blood pressure is stable without high-dose vasopressors, then transfer can be safe with appropriate medical teams. The question is transfer to where? New York versus another Turkish hospital is a strategic decision based on, again, quality of destination facility, cost considerations, long-term care needs including home care, family support, of course. And I would think your family support will be much stronger back home in New York.
Next, further diagnostics and treatments
Immediately needed, repeat MRI brain, EEG monitoring 24 to 48 hours, formal neurological consult, review of all sedative medications, treatment of recurring UTIs based on cultures, assessment for tracheostomy if prolonged ventilation expected. Now, he might have a tracheostomy already. You haven’t shared that in your email, so I would assume that after 43 days in ICU he would already have a tracheostomy, but at the end of the day we don’t know.
Now also consider the treatments your hometown doctor provided, vitamin C, B12, methylthioninium chloride, Cerebrolysin are not standard ICU care, but some have theoretical benefits. What matters most now is proper diagnostic workup.
Signs of progress and recovery chances
Positive signs you’re already seeing – response to voice and touch, purposeful movements, strong spontaneous breathing, minimal initial brain injury on imaging. What to look for? More consistent eye opening, following commands, even simple ones, increased purposeful movements, improvements in Glasgow Coma Scale score with proper assessments.
What are his recovery chances?
It’s impossible to give you percentages without reviewing all records, imaging, and current exams. But the signs you described are more consistent with potential for meaningful recovery than persistent vegetative state. Also, don’t let anybody tell you what a meaningful recovery is. Meaningful for you and your dad might be different to what the ICU team sees as meaningful.
Next, how to focus on neurological rehabilitation?
Here’s the reality, Ray, while he has active infections and is on a ventilator, acute rehabilitation is limited but the ICU team should be preventing complications such as contractures, pressure injuries with movement, physical therapy, physiotherapy, minimizing sedation, providing sensory stimulation, which you’re doing, planning for a rehabilitation facility transfer when stable.
Now let’s look at the long-term ventilation question.
Here’s something, Ray, that’s really important. If your father ends up needing long-term ventilation or a tracheostomy, or if he can’t be weaned off the ventilator in the coming weeks, you need to know about intensivecareathome.com. This is a long-term option that can keep your father out of ICU predictably and permanently. Many families don’t realize that patients on long-term ventilation, even with tracheostomy, can be cared for at home with 24/7 nursing support, critical care trained nurses, ventilation and tracheostomy management, quality of life, and in some instances, quality of end of life that’s simply impossible in ICU, family involvement in care, significant cost savings compared to long-term ICU or long-term facilities.
This applies whether he needs ongoing ventilation support for recovery or even for palliative care if that becomes the direction. Having him home in familiar surroundings with family rather than in an institutional setting can make an enormous difference. But let’s not get ahead of ourselves.
First, we need to properly assess where he is now. What should you do next?
Contact intensivecarehotline.com immediately and book a consulting call with myself. Email us, call me, or book a time with me on the website, there’s a link, schedule appointment. Do that now, not in a week.
Next step, request all medical records in English, or we can work with Turkish records as long as we can organize an interpreter, which shouldn’t be that difficult.
Next, during our consultation, we’ll review the complete medical picture, facilitate communication with the ICU Team, help you understand realistic prognosis, guide the repatriation decision, ensure nothing is being missed, make the transfer decision based on complete information, not pressure.
The bottom line, Ray, is that your father is showing signs that suggest potential for a recovery that may not be fully recognized. The combination of cardiac arrest, septic shock, and ongoing infections creates a complex picture, but the responses you’re witnessing are significant. The 43-day timeline is concerning but not hopeless, especially with active infection suppressing consciousness. And what you need is proper diagnostic workup as we discussed, expert review of all medical records, clear guidance on transfer decisions and advocacy to ensure your father gets best care and appropriate treatment.
Don’t make decisions under pressure. Don’t accept Glasgow Coma Scale 4 without proper documentation and without taking your opinion and observations into account. And don’t transfer him anywhere without understanding the full medical picture.
Again, contact intensivecarehotline.com and book a call with me as a next step. And if long-term ventilation becomes necessary, intensivecareathome.com offers options to get your father home with quality care, twenty-four-hour intensive care nursing, with evidence-based mechanical home ventilation guidelines, and twenty-four-hour critical care nurses.
I have worked in critical care nursing for 25 years in three different countries where I worked as a nurse manager for over 5 years in intensive care. I’ve been consulting and advocating for families in intensive care since 2013 here at intensivecarehotline.com. I can very confidently say that we have saved many lives with our consulting and advocacy because of our insights. You can verify that on our testimonial section at intensivecarehotline.com. You can verify it on our intensivecarehotline.com podcast section where we have done client interviews because our advice is absolutely life changing.
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Thank you so much for watching.
This is Patrik Hutzel from intensivecarehotline.com and I will talk to you in a few days.
Take care for now.