My name is Patrik Hutzel from intensivecarehotline.com, where we instantly improve the lives of families of critically ill patients in intensive care so that you can make informed decisions, have peace of mind, control, power and influence, even if you’re not a doctor or a nurse in intensive care, making sure your loved one always gets the best care and treatment.
Today I have an email from Peter, and Peter, I’m so sorry that you’re going through this incredibly difficult situation with your father. You found him collapsed, he had a cardiac arrest, now he’s in an induced coma, and now you’re facing pressure from doctors about withdrawing life support after just 2 days, and he’s only 57 years of age. It was a work accident, he’s been working, he’s been strong, he’s been independent, and this is actually every family’s worst nightmare in intensive care. I completely understand why you’re feeling devastated and confused.
Let me address your concerns about why doctors are rushing to pull the plug and what you need to know right now.
Why Are the Doctors in ICU Talking About Withdrawal of Treatment So Soon?
When someone experiences cardiac arrest and their brain doesn’t receive oxygen, doctors become concerned about anoxic or hypoxic brain injury. The fact that your father’s heart stopped and his brain didn’t get any oxygen initially is what’s driving the medical team’s pessimistic outlook.
However, here’s what’s critically important. 2 days is way too early to make any definitive decisions about neurological outcomes after cardiac arrest. Current guidelines suggest that neurological prognostication, predicting brain function outcomes, should not be made before at least 72 hours, 3 days after cardiac arrest, and many experts recommend waiting 5 to 7 days or longer, especially when the patient is still sedated or recovering from sedation.
There has been alcohol withdrawal which your father is experiencing. The patient is on medication that affects brain function. There has been recent sedation for procedures like MRI. Your father is dealing with multiple factors that make early assessment unreliable. He’s only been in ICU for 2 days. He’s going through alcohol withdrawal, he’s on a breathing tube with sedation and opiates, and he has significant brain swelling.
So Peter, here’s what you need to do right now.
- Request access to all medical records. You absolutely need to get copies of all medical records, including emergency department notes, ambulance notes and paramedic reports, downtime documentation, all ICU progress notes from doctors and nurses, MRI and CT scan reports, electroencephalogram (EEG) results if performed, medication records, vital signs flow chart, ventilation chart, fluid balance, pathology and laboratory results. Leave no stone unturned. Having complete, not incomplete, medical records is essential for understanding what’s really happening and making informed decisions.
- Get second opinion through expert consultation. This is exactly where a consulting call with myself or one of my team members at intensivecarehotline.com becomes invaluable. We can review all medical records with you, participate in a conference call with the ICU team, ask the right questions that you might not know to ask, challenge premature recommendations for withdrawal of life support, advocate for appropriate time frames for neurological assessments, and ensure your father gets every reasonable chance for recovery.
We’ve helped hundreds, if not thousands, of families in intensive care navigate exactly these situations where doctors are pushing for early withdrawal of treatment, often unnecessarily. We know exactly how to question and advocate effectively.
Keep in mind, 70 to 90% of intensive care patients survive. That’s the part the ICU team isn’t telling you, so you absolutely need to question why your father should not survive, because the odds are in your father’s favor.
Next, request specific tests and assessments. Ask the ICU team about the Glasgow Coma Scale, EEG to check for brain activity and seizures, neurological consultation if not already involved, and serial neurological examinations over several days, not just one assessment.
The most important thing right now is to buy time for your father’s brain and body to recover. Brain swelling takes time to resolve, alcohol withdrawal takes time to clear, the effects of sedation take time to wear off. Some patients who look devastating in the first few days after cardiac arrest can make remarkable recoveries. I’ve seen it happen countless times in over 25 years of critical care nursing in intensive care and Intensive Care at Home.
The other thing that’s important to know Peter, you should be asking the question: where’s the rush to end your father’s life? Why is there no rush to save your father’s life? Which is what you’re asking in essence but you should put that question to the intensive care team. Why are they not rushing to improve your father’s situation? Why are they rushing to end your father’s life? Very different perspectives. And I know which perspective you want to take, otherwise, you wouldn’t have reached out. Where’s the urgency to kill someone? Ask them that question. Why is there no urgency to save your father’s life and get the best possible outcome?
Also, make decisions today that you won’t regret in 12 months’ time. You would probably regret agreeing to stop treatment for your father.
Next, the fact that your father can move his eyes and squeeze hands on command is actually very encouraging. These are signs of neurological function. The medical team asking if he loves you, eye shifts, and requesting exercise shows they’re assessing his ability to follow commands. This is a very good sign, not a bad one. Keep doing these exercises, document every response, video record them if you must, his evidence of neurological function is crucial.
Your father’s alcohol withdrawal is significantly complicating his clinical picture. Alcohol withdrawal can cause confusion and altered mental status, seizures, agitation requiring more sedation, brain swelling, and changes in vital signs. The ICU team needs to account for how alcohol withdrawal is affecting his neurological examination. You cannot make accurate predictions about brain recovery when someone is actively withdrawing from alcohol.
The ICU team cannot just withdraw life support without your consent, that is illegal. Do not let anyone push you around. Withdrawing life support without your consent could be perceived as euthanasia or even murder. Exercise your rights and check with your local laws. But I can assure you that’s illegal.
What About Long-Term Ventilation Needs?
If your father needs prolonged ventilator support or potentially a tracheostomy, there are options beyond staying in ICU indefinitely. intensivecareathome.com provides long-term ventilation solutions that can keep patients out of ICU predictably and permanently. Whether your father needs invasive ventilation through a tracheostomy, non-invasive ventilation such as BiPAP (Bilevel Positive Airway Pressure) and CPAP (Continuous Positive Airway Pressure), tracheostomy without ventilation, weaning at home from a ventilator, or palliative care with or without ventilation support if that is the only option, we can help arrange appropriate 24-hour home care with intensive care nurses. That provides intensive care level monitoring, intensive care nursing, intensive care medical oversight, and treatment outside the traditional ICU setting. This gives patients a better quality of life and keeps them out of the hospital environment long-term.
Questions to Ask the ICU Team
- What specific prognostic tests have been done and when were they performed?
- Why are we even discussing withdrawal of treatment at 48 hours when guidelines recommend at least a few days, if not a few weeks, and sometimes a few months?
- Why are they rushing to end someone’s life? Why are they not rushing to save your dad’s life?
- How are they accounting for alcohol withdrawal, sedation, opiates, and brain swelling in their assessment?
- What is the plan for serial neurological examinations over the next several days?
- Has neurology been consulted for a comprehensive evaluation?
- Can we have a family meeting with the full team to discuss the treatment plan and timeline?
Do not let them rush you. The only thing you should rush is putting pressure on them to save your dad’s life. That’s the only thing you should rush. ICUs sometimes push families towards early withdrawal of life support due to resource constraints, trying to stay in control of the narrative of who lives and dies, prognostic pessimism, or simply misunderstanding of guidelines. You have all the rights to request continued treatment, get second opinions, transfer to another hospital, have adequate time to make decisions, and receive clear, evidence-based prognostic information.
Immediate Action Steps:
- Request all medical records.
- Schedule a consulting call with myself at com.
- Firmly but respectfully tell the medical team you need more time and want to follow guideline-recommended time frames for prognostication.
- Continue the exercises and document all responses.
- Request specific testing: EEG, MRI, CT scans, neurology consult.
If your dad is awake and obeying commands, you can ask him whether he wants to live or die.
I think the answer is on the hands. That should be the answer for the intensive care team, they should ask your dad.
To sum it up, at intensivecarehotline.com, we specialize in helping families exactly like yours who are facing pressure to withdraw life support prematurely and unnecessarily. Most patients in ICU survive, but that’s not what the ICU team is telling you. We can help you ask the right questions and advocate effectively for your dad.
For long-term ventilation planning, visit intensivecareathome.com to explore options that can provide your father with intensive care level nursing 24 hours a day with intensive care nurses outside of ICU if needed.
Peter, don’t give up. Your dad is only 57 years of age, was previously strong and healthy, and is showing signs of neurological function. It’s far too early to give up. He deserves every reasonable chance at recovery, and you deserve expert support to navigate this crisis.
I have worked in critical care nursing for 25 years in three different countries, where I worked as a nurse manager for over five years in intensive care. I’ve been consulting and advocating for families in intensive care since 2013 here at intensivecarehotline.com. I can very confidently say that we have saved many lives with our consulting and advocacy, because of our insights, and you can verify that on our testimonial section at intensivecarehotline.com and on our podcast section where we have done client interviews. Our advice is absolutely life-changing.
The biggest challenge for families in intensive care is simply that they don’t know what they don’t know. They don’t know what to look for, they don’t know what questions to ask, they don’t know their rights, and they don’t know how to manage doctors and nurses in intensive care. That’s why we help you to improve your life instantly, making sure you make informed decisions, have peace of mind, control, power, and influence, making sure your loved one gets the best care and treatment always.
That’s why you can join a growing number of members and clients that we have helped over the years, saving their loved ones’ lives. That’s why I do one-on-one consulting and advocacy over the phone, Zoom, WhatsApp, whichever medium works best for you. I talk to you and your families directly. I handhold you through this once-in-a-lifetime situation that you simply cannot afford to get wrong. When I talk to families directly, I also talk to doctors and nurses directly, asking all the questions that you haven’t even considered asking but must be asked when you have a loved one critically ill in intensive care.
I also represent you in family meetings with intensive care teams. We also do medical record reviews in real time so that you can get a second opinion in real time. We also do medical record reviews after intensive care, in case you have unanswered questions, if you need closure, or if you are suspecting medical negligence.
We also have a membership for families of critically ill patients in intensive care, and you can become a member if you go to intensivecarehotline.com and click on the membership link, or if you go to intensivecaresupport.org directly. In the membership, you have access to me and my team 24 hours a day in the membership area and via email, and we answer all intensive care-related questions. In the membership, you also have exclusive access to 21 e-books and 21 videos that I’ve personally written and recorded. All of that will help you to improve your life instantly, make informed decisions, have peace of mind, control, power and influence, making sure your loved one gets the best care and treatment, always. All of that you get at intensivecarehotline.com.
Call us on one of the numbers on the top of our website or simply send us an email to [email protected] with your questions.
If you like my videos, subscribe to my YouTube channel for regular updates for families in intensive care. Click the like button, click the notification bell, share the video with your friends and families, and comment below what you want to see next, what questions and insights you have from this video.
I also do a weekly YouTube Live where I answer your questions live and you will get notification from the YouTube Live if you are a subscriber to my YouTube channel or if you are a subscriber to my intensivecarehotline.com email newsletter.
Thank you so much for watching.
This is Patrik Hutzel from intensivecarehotline.com and I will talk to you in a few days.
Take care for now.