Hi, it’s Patrik Hutzel from INTENSIVECAREHOTLINE.COM , where we instantly improve the lives of Families of critically ill Patients in Intensive Care, so that you can have PEACE OF MIND, real power, real control and so that you can influence decision making fast, even if you’re not a doctor or a nurse in Intensive Care!
This is another episode of “YOUR QUESTIONS ANSWERED” and in last week’s episode I answered another question from our readers and the question last week was PART 10 of
You can check out the answer to last week’s question by clicking on the link here.
In this week’s episode of “YOUR QUESTIONS ANSWERED” I want to answer another question from one of our readers and the question this week is PART 11 of
MY AUNTY IS IN INTENSIVE CARE ON ECMO FOR ARDS, WE’RE VERY WORRIED SHE MAY DIE! HELP! (PART 11)
Today Angie, the mother of Lee who wrote in previously has written in about her sister’s progress.
During the time of the consultation I was interacting with both, Lee and Angie(Lee’s mother). Lee was the first person to make contact about his Aunty being in ICU and as the consultation progressed, I was interacting with both, Angie and Lee.
Today concludes this series of questions with Angie and Lee.
You can go back to all parts of this question here by clicking on the links
Angie from the UK writes
Hope you are well, my sister has improved a lot since I last wrote to you, she is doing great on this weaning plan, she managed to walk around the room with a zimmer frame and without being attached to the ventilator.
Today the nurse informed me that the plan is for my sister to have the cuff down during the day and to rest during the night.
The settings on the ventilator are EPAP 20 and IPAP 6, she is still bringing up a lot of secretions but they are now clear!
I’m told she has a really good strong cough, she has failed 3 swallowing tests so is still being fed through the tube, she remains in isolation still due to the MRSA but is no longer on any antibiotics.
The consultant and the nurses are pleased with her progress, however the dilemma is her mental health, her own psychiatrists wanted her to start back on her medication (clozapine) but the consultant at the intensive care has refused and said it is dangerous which confirms what us as a family agree with, so she has been prescribed Olanzepine and we are waiting for these to start working.
My sister was introduced to a doctor on one of the wards who told her that she will be spending some time on the chest ward when she is ready to leave the intensive care unit which i was happy about, because to me this is the first time anybody has actually mentioned the future.
I would be happy to do an interview with you after all the help and support you have given us, possible once my sister is off the intensive care unit , i will keep you updated.
Take care and many thanks Angie.
thank you for the update!
It’s great to hear that your sister is progressing well!
It’s so important to be future oriented, especially since Intensive Care is an environment where people are often living in the present because things in ICU can be so unpredictable! As you and your family know by now, Intensive Care can be a very volatile environment!
As far as your sister’s progress goes, even though it sounds like she’s progressing well, always keep in mind where she came from and in your sister’s case she was on ECMO and she was gravely ill.
Therefore the steps she has taken are quite remarkable and it shows the resilience your sister has.
As you know by now, things don’t happen fast in Intensive Care, but given that your sister is walking and has time off the ventilator, you know the progress she has made!
As far as her ventilator settings go, she is now on less support, but EPAP 20 and IPAP 6 is still a fair bit and failing swallowing tests is a sign that she’s probably not quite there yet to have the ventilator and the tracheostomy removed completely.
- FOLLOW THIS PROVEN SYSTEM TO AVOID THE 3 MOST DANGEROUS MISTAKES YOU ARE MAKING BUT YOU ARE UNAWARE OF, IF YOUR LOVED ONE REQUIRES LONG-TERM VENTILATION WITH TRACHEOSTOMY IN INTENSIVE CARE!
- THE 7 ANSWERS TO THE 7 MOST FREQUENTLY ASKED QUESTIONS IF YOUR LOVED ONE REQUIRES ONGOING MECHANICAL VENTILATION WITH TRACHEOSTOMY IN INTENSIVE CARE!
But having time off the ventilator during the day and back on at night is a good sign and it shows that she’s moving in the right direction!
I am a little wary of your sister still being isolated for MRSA. Many Intensive Care Units nowadays have moved away from isolating MRSA Patients as long as staff and visitors obviously adhere to doing proper hand hygiene and wearing gloves and gowns.
There shouldn’t be a need for your sister to be isolated. Often isolation rooms are dark with no natural daylight and they literally can feel isolating.
See what you can negotiate and find out whether there is another option. Also, have they started to take your sister outside at least on some occasions?
Get them to take your sister outside in a wheelchair and get her some natural daylight! It’ll do wonders for her! Also make sure that she’ll get regular showers, again it’ll do wonders and things like getting outside and having regular showers are better than any “magic pill”.
I can’t really comment on how your sister’s mental illness should be treated, however it sounds like it’s the right thing to do to get a Psychiatrist involved after Intensive care. Try and stay involved there if you think it’s the right thing to do. You and your family know your sister best.
Overall, your sister’s situation very much reminds me of some ECMO Patients that I have looked after over the years. Two steps forward and one step back.
And your sister’s situation also reminds me of Ellie’s Mum’s situation, where they at one point they may have removed the tracheostomy a little too early and she ended up with a tracheostomy for a second time before she had it removed completely.
Again, often it’s two steps forward and one step back.
I am not suggesting that this should be happening with your sister, but it may well happen, so be prepared.
I would love to do an interview when you’re ready. I understand that now your focus and your priority is on your sister and her well-being! You also need to look after yourself, although I know you and your family have shown massive strength and resilience!
No matter the outcome you will come out of this a lot stronger and you will have learned some valuable life lessons out of this situation!
Let me know when you are ready and we can schedule an interview via Skype.
In the meantime, please let me know if you have any other questions!
How can you get PEACE OF MIND, control, power and influence quickly, whilst your loved one is critically ill in Intensive Care?
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- How to ask the doctors and the nurses the right questions
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- 5 mind blowing tips& strategies helping you to get on the right path to PEACE OF MIND, control, power and influence in your situation
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- How to stop being intimidated by the Intensive Care team and how you will be seen as equals
- You’ll get crucial ‘behind the scenes’ insight so that you know and understand what is really happening in Intensive Care
- How you need to manage doctors and nurses in Intensive Care(it’s not what you think)
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This is Patrik Hutzel from INTENSIVECAREHOTLINE.COM and I’ll see you again next week with another update!